Tracy is doing so much better! Sorry I haven’t blogged but, and I am not
complaining, but being back home is so much more difficult than being at U of
M.
In my last blog I forgot to mention that Diana Bono came to
Heartland and cut Tracy’s hair, it was such a big thing for Tracy. I can’t believe I forgot to write about it as
it made Tracy so happy.
Tracy thinks she can get up and go anytime that she wants
to, but she is neither confident enough nor strong enough yet. This requires that I be with during the day
to make sure that she doesn’t try to get up and walk on her own and fall.
She is still on the feeding tube but and is eating
mechanical soft foods too. She doesn’t
eat much because of the feeding tube, even though they encourage her to eat
more. It’s kind of a catch 22
situation. If they would reduce the
feeding tube, she would be hungrier, but they say they need to keep her
calories up.
We have been at Troy Beaumont for the past week receiving
her 3rd of 4 Rituxan treatments and her 4th of 6 IVIG
treatments. The nurses here have been
wonderful, so many of them took care of Trace back in November during our stay
and are getting to meet the real Tracy Bowden.
Tracy has had many visitors during our stay here that I am sorry I can’t
remember all of them, but thanks for making her days more enjoyable. Later today, Saturday April 21, 2012, we are
headed back to Heartland for another stay to get more rehabilitation.
We will be back at Troy Beaumont as an outpatient for
Trace’s final Rituxan treatment on Monday.
Tracy was also cleared to travel by car with me. So we are planning to go to church soon and
out for dinner this Tuesday to celebrate Drew’s 17th birthday!
Tracy loves to have visitors, however the schedule at
Heartland doesn’t make it easy. So if
you are planning on visiting please give me a call to make sure it works and if
you know far enough in advance I will try to schedule another visitor around
your visit so that I can either go to work or run some errands. I could use some visitors Tuesday morning to
free me up for a meeting in Pontiac.
The lack of a set schedule is what is making being back home
more difficult. I am with Tracy from
basically from 8AM to 9PM and then home with Drew. We usually stay up until around 10 or so
talking and watching TV.
It is so good to be home with him, these past 5 months have
been so difficult for him, especially this past week, so it is really good to
be home with him. He has learned so much
about his friends during this time as they have prayed for him and walked
alongside him throughout this journey.
God Bless and “Never Give Up… Never Ever Give Up!”
Rob
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