Sorry it has been a while, but it has been a bit crazy. Tracy is doing awesome.
Thursday was truly an amazing day! I had a meeting for work in Saline at 9AM, so
I stopped by to see Tracy before I left, but she was asleep, so I got early
start for the meeting.
Just I was walking into the meeting, I got a text from
Drew. It read “Got a 32 on my ACT”. I was so excited; I had tears in my
eyes. I was immediately asked if I was
alright, I said that I just gotten my son’s ACT score and was so excited, considering
all that we have been going through. God
is so good.
After the meeting I met a new friend, Matt Morelli, for
lunch at Angelo’s, so it turned into brunch.
When I got back to Tracy’s room around 1PM they were getting
ready to start the first dose of the 3rd IVIG treatment. I was hoping it would go well, so that I
could run home for an hour or two to let Drew know how happy I was for
him. But, the dose didn’t go so
well. It was a higher concentrated
dosage and what should have taken about 3 ½ hours took 9. I was crushed; I so desperately wanted to
surprise Drew by going home. But the
celebration would have to wait till Friday.
The whole discharge situation has been clarified. I now call it a transfer, as that is
basically what will happen. Tracy needs
to be moved to a rehabilitation center to continue to improve. She needs daily physical therapy and currently
only receives it here 2-3 days a week for ½ an hour to an hour a day. In a rehabilitation center it would be more
time each day and five times a week. The
concern now is where do we transfer her too.
It all depends on how her treatments are handled and by whom.
Friday was dose #2 of IVIG; it went much better but still
took longer than it should have by about 3 hours.
Friday was also the arrival of Drew and start of his spring
break. So to get the break off to a good
start and celebrate his ACT score we went out for a steak dinner. We had a great time and returned back to the
hospital to find awake and then stayed until she fell asleep.
Saturday was dose #3 and this time the lowered the
concentration and the treatment went without a hiccup. Tracy is awake the majority of the day and desperately
wants to get out of bed to do things.
She gets confused as to where she is and thinks she needs to make Drew
and I lunches and dinners, do the laundry and even dust the house! These are all good things, however it is
becomes very trying, as we cannot convince her at times that she is in the
hospital and not a home. We actually got
into an argument Saturday evening. I
thought my patience was being tried previously with all we have gone through,
but trying to reason with Trace is going to take patience to a whole new level
for me.
We also had Mike and Lou Ann Morton stop by in the afternoon. It was nice to have company and Tracy enjoyed
the visit.
Sunday has been another good day dose #4 is in the books and
also went of with out a hitch, the lower concentration is working. Drew and I came over this morning about 9AM
and they had already started Tracy’s treatment.
Drew headed down to the cafeteria to do some homework while I stayed
with Tracy. About 11:30 we went to
Angelo’s for breakfast and had another wonderful meal. We returned to find everything going really
well with Tracy other than the confusion of being in the hospital and wanting
to get out of bed.
I am not sure how much longer Tracy is for room 5131, nor
Drew and I for the Med Inn. But I
believe things will be changing in the next week for all of us.
Thanks again to everyone for your prayers, visits, emails,
texts, and donations of rooms in the Med Inn and cash and gift certificates,
dinners in Troy and cleaning of our house.
God Bless and “Never Give Up… Never Ever Give Up!”
Rob
No comments:
Post a Comment