Treatment 18

Well you know the saying, “you got to take the bad with good”?  That’s where we are now.

Thursday was a good day.  Debbie Paquet came to visit in the afternoon and stayed until early evening.  Debbie always brings a book and a cribbage board, but some how they never make it out of her bag.  However something did come out of her bag this time, hair clips!  Trace’s hair has gotten so long that it hangs in her eyes.  In my almost 22 years of knowing her, I have never seen it so long.  I like it!  I have always wanted her to grow it out and she would start and then give up after a couple of months.  I don’t know when she last had it cut, but I know it has been at least since October 20^th, when this whole journey went in to high gear.

Tracy has had another reduction in her Ativan, a good thing.  We are currently at 6mg per day, a long way from the 18mgs not long ago.  Because of the reduction she is much more active and very lucid at times, a really good thing.  But with the activity comes some bad things; she tries to get out of bed and has plays with her feeding tube in her nose.  I noticed a change in her feeding tube Thursday and was told it was just discolored from mucous. 

Friday was Treatment 18, another good thing.  Her treatment went very well, however it left her very drowsy and tired.  It was also a day of conversations about health insurance.  Not really a good thing, but we have Heather on it.  Please continue to pray about this too.  And to quote Forest Gump “that’s all I have to say about that”.

Friday was also a good day for Tracy, as I said very drowsy, but more with it than the last treatment.  It was also a very good day as Drew came out early and not only did he come out early, he brought good news.  Bragging time!  He was able to report that he had the results of 5 of his finals and was waiting on the sixth, English, one of his 3 AP courses this semester.  He is getting all A’s so far!  We are so proud of him, it was a very aggressive schedule for him and in spite of all that is going on with our family, he has guaranteed himself better than a 4.0!

Friday also included talks of reducing Tracy’s Ativan even more, probably to 4mgs per day.

Tracy also got a new bed on Friday, yes Jay; it’s a Hill-Rom bed.  It has air bladders in it, which means that the nurses do not need to rotate Trace from side to side, but the still do.  This new bed also appears to be more comfortable.  One of the bad things is that with the air bladders the mattress is much thicker, making it sit higher thus making the rails lower and a greater risk of Trace falling out of bed, not good.

Drew and I celebrated at BD’s Mongolian Grill for dinner, only 3 plates for him this time.

That was our week.

Drew says he will write the next blog, therefore I will the weekend to him.

God Bless and “Never Give Up… Never Ever Give Up!”

Rob

Romans 8:39